Everything i ve never said
Everything Ive Never Said by Samantha WheelerAva would like nothing more than to tell her family she loves them, particularly her big sister, Nic. But Ava has Rett syndrome - she cant talk, cant nod her head, cant even point at a communication card. She understands everything, but no one understands her.
When tragedy strikes her family, Ava becomes even more determined to talk. But its not until she meets occupational therapist Kieran and new friend Aimee that she is hopeful for change - and to find her voice at last.
A powerful novel about a subject rarely tackled - young people with disabilities and the families who love and support them.
Everything I’ve Never Said – Samantha Wheeler
Oct 3, What Am I Reading? Every so often, a book comes along that touches your heart in places so tender it hurts. A book that makes you cry because of the frustration and sadness in the world, but also makes you laugh out loud with joy because of small kindnesses and the many sources of happiness that are to be found despite the pain. Samantha writes from lived experience — one of her own daughters has Rett syndrome, a rare genetic condition which means she has little or no control over the muscles in her body. The girl at the centre of this story, Ava, understands everyone and everything around her — there is nothing wrong with her intelligence — but she needs assistance to eat, to swallow, to walk, to even move her hands the way she wants to. But most importantly of all, she cannot communicate.
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Or a zoologist. Have six kids, a loving husband and a home brimming with flowers and pets. I did become a scientist, got married and had two beautiful daughters. But when my youngest, Charlotte, struggled to crawl, babble, or talk, things started to unravel. Physically, she had small feet, wringing hands, and often choked on her food. She also struggled with sensory overload, with an intense dislike for sharp sounds, like babies crying or Christmas paper being unwrapped.
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She understands everything, but no-one understands her. Ava would like nothing more than to tell her family she loves them, particularly her big sister Nic. It is characterised by a lack of control over muscles and a range of limitations including repetitive hand movements and an inability to speak. Samantha Wheeler lives in Brisbane, Queensland. She was born in London and moved to South Africa when she was five years old and adopted a pet tortoise. Samantha has written five books about Australian Animals and the environmental impacts that are bestowed upon them.
Simply link your Qantas Frequent Flyer membership number to your Booktopia account and earn points on eligible orders. Either by signing into your account or linking your membership details before your order is placed. Your points will be added to your account once your order is shipped. Click on the cover image above to read some pages of this book! Ava would like nothing more than to tell her family she loves them, particularly her big sister, Nic. But Ava has Rett syndrome - she can't talk, can't nod her head, can't even point at a communication card.